Families requiring access to genetic testing and clinical genetic expertise are facing significant challenges in their personal lives due to the lack of access to correct expertise and ongoing extended waiting times, according to a study carried out by The Adelaide Health Foundation.
“A Study of Genetic Counselling and Testing in the Republic of Ireland,” considered the current position of the Irish healthcare system’s clinical genetic services.
Among the eight recommendations of the report were the establishment of a national educational framework to support the growth of mainstream genetic and genomic testing and the development of healthcare professional competency in genomic testing and consent procedures.
On foot of these recommendations, the Adelaide Health Foundation has committed €1.5 million to improve Ireland’s genetic counselling and testing services.
Through a three-year multi-phase project (2025-2027), and working in conjunction with national, academic and healthcare partners, the Adelaide Health Foundation will support projects which improve the patient experience, commencing with a focus on education, including the development of an accredited programme for Health and Social Care Professions and an MSc in Genetics.
The Adelaide Health Foundation (AHF) is a voluntary foundation focused on advancing and promoting equitable access to healthcare services and education in Ireland, through the pillars of Community, Research and Education.
